Our work at RAiN newsletter brings together the work of our affiliated researchers, patients, and advocates to share the impact of our rare disease research journey.

Our network serves as a vibrant hub where knowledge is shared, collaborations are forged, and innovative research is nurtured. Through accessing our resources and expertise, you can amplify your voice and make a lasting impact in the rare disease community.

Stay tuned for updates on upcoming events, valuable resources, and inspiring research work in our network newsletter. Together, let's transform the way we tell our stories and change the future of rare disease research!