We are the All-Ireland Rare Disease Interdisciplinary Research Network (RAiN)
The All-Ireland Rare Disease Interdisciplinary Research Network (RAiN) works to strengthen effective links between researchers, industry, government, local authority, charity, patient and caregiver partners in the field of rare diseases across the island of Ireland.
RAiN was initiated by funding from the Department of the Taoiseach from the Shared Island strand of Irish Research Council’s ‘New Foundations’ awards, and has achieved further funding from UCD Strategy. The network builds on established north-south research partnerships between University College Dublin and Queen’s University Belfast.
What is RAiN?
Interested in Rare Diseases?
Learn more about rare diseases and their impact across the island of Ireland and globally below.
Wanted: Young people between 6-17 years!
Our team are currently trying to recruit more young people for our Children’s Research Advisory Group (CRAG). Are you between 6-17 years? Do you live with a rare disease or know someone who does? Are you interested in advocating for rare diseases?
Reach out to Melissa, our coordinator at RAiNAllIreland@ucd.ie. Our young people would love for you to get involved!
Join the RAiN CRAG today!
About the Network
By fostering collaboration among researchers, practitioners, policymakers, patients and families working on rare diseases, RAiN will advance health service developments, leverage funding, and facilitate internationally excellent translational rare disease research.
Learn more about RAiN, its mission and aims below.
Projects and Research
Research into rare diseases works to provide a better understanding and innovative solutions for the individuals affected, ensuring they receive the care and support they deserve.
Learn more about the network’s research activity and relevant rare disease projects below.
News and Events
Staying connected in a network is crucial as it enables the exchange of knowledge, collaboration, and support, ultimately driving innovation and progress in the field of rare disease research
Stay informed with the latest news and events from RAiN below.
“Through the RAiN network, researchers will work in partnership with patients and families to make real impacts in the day-to-day care, treatment and management for those living with conditions such as cystic fibrosis, PKU, chromosomal anomalies, and childhood cancers, and enhance cooperation in how we respond to these challenges on an all-island basis.”
— Taoiseach Leo Varadkar, TD
